Cupcake Cake

When Grandma Brice came to visit she brought with her this really cool pan, that makes a cake but it is like a huge cupcake. Here are the pictures from that cake she made.

New Table

i am so excited. i bought this table last night and Laurie and John came over and helped us put it together. TJ actually did the table and the bench all by himself, with help from the brothers and then John put together the corner bench. Dustin made rice krispie treats at scouts so they are having a snack at the new table. It fits perfect in the corner.

Rochester Musuem & Science Center

One of the perks about working for the YMCA is each spring I usually receive invitations to visit local places to encourage me to book them for the summer field trips. They encourage you to bring your own children to see what it would be like. Last year a lazer tag facility invited us and we ended up being the only people there (i felt bad for the facility) but the boys had a great time. Any way, the science center had their open house last night, so my assistant and good friend, Laurie with her 9 year old daughter, Emma, went with myself, Kenzie and Dustin. Kenzie was a little nervous cause it was loud and she did not like some of the large things. Here are a few shots of her playing with large, real size tinker toys and a exhibit where you point the sailboat and there are fans blowing to show you how a sailboat works. She was to short so i had her sitting on the edge(that is the red part) and then she wanted to crawl across it to get the boats. It kept her happy while the older kids were in one of those rides that the doors close and you feel like you are under the water in a boat. i am trying to keep up with this a little more so that everyone can see how the family is changing. i know i have 3 other kids and i will try to take some pictures of them and put them on here also. haha

Good thing about the Hospital

One thing that happpened about the hospital stay was that the Harlem Globetrobbers (did i spell that right) were in town so one, named Buckets, came to visit the kids and show them their skills. Dustin is not that into basketball but he really enjoyed it. he was more worried about wearing his hospital shirt in front of everyone. but then when we got to the room and he saw everyone else had their hospital clothes on he was ok.

Dustin Update

Just to let everyone know that Dustin is responding well to the meds, he has not had any problems with them. he actually is still excited about taking them, he even reminds me. tonight we had to up the dose, because it is a gradual increase till he gets to the right amount and he was right there telling me. i am waiting to see how long he thinks it is fun to take meds. right now he has capsules that we break open and sprinkle over applesauce. he has tried pudding but says the applesauce is best. anyway eventually he will be able to take pills that he can swallow but i am not sure when he will feel comfortable. i want to thank everyone for their help, thoughts and prayers, it really meant alot to our family.

Hospital Visit

So here is Dustin hanging out at Strong Hospital getting an EEG on him. Let me tell you a little bit about what happened. Dustin has had februial seizures since he was 4 1/2 which means he has a seizure with a fever. since this christmas school break he has had about 6 seizures but they have not all been related to fevers. we knew something was up so we had an appt on feb 3 to see his pediatric neurologoist, i guess dustin wanted to see him sooner cause at school on thurs the 29th he has a seizure but this time it was catergorized as a grand mal seizure, which means he went blank, rigid and shoke. all this took place in the nurses office. he was taken by ambulance where i (michele) met him there, after they gave him some meds we waited for about 2 hrs before he really came out of it, then they took him in ambulance to strong childrens hopsital and admitted him on the neurology floor. they did a cat scan, an mri and the eeg. scan and mri came back fine but the eeg was abnormal more than usual for him so they diagnosed him with seizure disorder or epilepsy. it is being regulated with meds and he should be able to live a normal life. we have to have lab work done every 3 mths and then in 2 yrs they will reevaluate what is happening. so that was the excitement of the week. grandma brice (darlene) came in to help in case it was worse and to give me a break so it has been fun having her around.

dustin

ok this is almost a week later srry but here it goes last thursday still in january dustin had a seizure lasting about 2 hours and he is fine now i thought i would mention that ok well there are pictures but my mom can't email them to me so they will be here soon